Trevor's AllstarsIts was a rough start to the day… This has been the hardest age for him to go through this stuff yet. He understands fear and anticipation 
He is so bad at taking oral meds that he didn’t get even half of the versed dose he needed to sedate him for the IV so after 2 attempts and LOTS of tears, sweat and screams they just took the blood they needed to type match him in the event he needs blood during the procedure and were going to wait until after they gave him the gas to put him to sleep. Well I could hear him screaming and crying as I walked down the hall way. How scary must that have been for him to have a mask coming at and being held to your face 
As usual, even after zofran, reglan and emptying his stomach, he still threw up several times. Poor guy! I wish he tolerated the anesthesia better.
We got through the night, Trevor doesn’t seem to sleep much when we are here so he finally got into a deep sleep around 4am only to be woke up for a chest x-ray at 4:45! We are waiting for the ECHO and Lung Scan and hopefully we will go home today as planned.
Off to find some coffee…strong coffee!
You have to see this! Its amazing.
another week of hoping and praying Trevor stays healthy so he can go in for his heart cath for the stint. Although I really don’t want him to go in for this, I know he needs it and building up twice now to be let down due to illness is no fun either. I do not realize how much it takes out of me to mentally, emotional and literally plan for Trevor to undergo another procedure.
As I was jogging today my iPod was playing a random selection of Matthew West songs…not in order on my play list but God’s message to me. It was loud and clear! First was Something To Say, if you know this song maybe this line stands out to you too Your life is the song that you sing, and the whole wide world is listening, well the answer to the question is, you were created, your life is a gift and the lights are shining on you today. I quote these lyrics because until Trevor can speak for himself about his CHDs I am his voice and the world is listening to me. The next song was The Motions. This song is so powerful, it can have a meaning for any situation but for me and my journey If I “go through the motions” my child’s future could be in jeopardy. As a Heart Mom I have to stand up for Trevor and when I do I stand up for all Heart Kids. Third (in a row) and last song that played was Stop The World. Let me tell you how often I am thinking and praying stop all this senseless noise I need to hear from YOU! I need God to hold me and I so want to hear from Him.
Through this entire roller coaster I have always trusted God, leaned on him and needed him to carry me many times. A friend told me that God chose me…ME…to be Trevor’s Mommy and that He knew I could handle it. I had never really accepted that before, I am sure my family and friends have told me something to that effect since day one and I just never soaked it in. God does not make mistakes. He is in control and I know this.
Philippians 4:6 says Do not worry about anything, instead pray about everything. WOW is it really that simple? Yes! When we start to worry we need to immediately stop and pray about it. We cannot worry and pray at the same time ;o)
Well that is all for tonight. God Bless!
Love & Hope,
Sarah
Thank you all for the well wishes and support! Trevor is feeling better thank God. We have another date scheduled for the heart cateterization, February 4th.
Here is a link to Trevor’s CaringBridge page for those who may not have it: http://www.caringbridge.org/visit/trevor07
Love & Hope,
Sarah
Trevor is sick 
please pray for a speedy recovery. It seems viral at this point.
This week Trevor is going in for his fourth heart cateterization, this time a stint will be placed to keep his LPA open for proper flow to his lungs.
I can’t help but wonder why my little boy has to endure so much when he is so healthy, besides his heart of course. He is not a sickly kid he is stronger than most 2 year olds and he never stops! Its hard to accept that he needs all these procedures when on the outside he seems perfect.
I thank God for that but when it comes time to hand him over to be put under for multiple hours knowing that when he gets out he will be sick, agitated and very hard to console. Nothing makes me, a mom, feel more helpless.
Thanks for reading and prayers are appreciated for both of us ;o)
Sarah <3
Get your tickets for the 2010 Hope for Hearts: A CHD Benefit Concert here: www.hopeforhearts.eventbrite.com
Please mark your calendars, the Hope for Hearts Benefit Concert has been moved to February 28, 2010.
McKenzie need life saving heart surgery but cannot get to John Hopkins in MD. Medical Transport is required, if you will pray or have any connections please reach out. Its hard to understand that transportation is all that is in the way of this 22 month old’s LIFE.
We are very excited to announce that you can get your tickets now! They are by donation so anyone can afford to attend! I am honored to be raising critical dollars for The Children’s Heart Foundation. Thank you for your support!
Hello All I wanted to bring your attention to the new www.FirstGiving.com donation widget we put on our site. This is to help collect donations for the upcoming Hope for Hearts CHD Benefit Concert. It is primarily aimed to those of you out of town or unable to atten who want to support CHD research or for those of you who want to make a donation above the ticket price for the concert.
Thank you,
Sarah
