Jun
21
Summer is here in Sunny Florida, that is for sure. Trevor is loving swimming and having Nicholas home everyday with him. These two boys are like peas in a pod!
Trevor’s cardio check up went wonderfully, no new issues and see ya in 6 months YAY! He is a healthy 35 pounds and 42 inches tall, my little miracle.
If you are not already following Nels Matson and Bike4theCHF you should! Nels is cycling across the USA to raise money and awareness for The Children’s Heart Foundation. Nels is a CHD survivor and extreme athlete. www.bike4thechf.org
Hello, I first saw Trevor’s story on youtube then came here. I’m a CHD survivor as well, now nearly 18 and living a normal life. It makes me cry with mixed emotions whenever I hear about another CHD child, on the 1 hand it’s nice to know that there are others out there and on the other it is something that having put my family through it, I would never wish on anyone. It also forces me to look back at the long road. Above all I’m glad that more kids make it and live normally now than ever before. I do the walk every single year because I can and because I couldn’t live with myself if I skipped it. When I was younger my family was involved in the children’s heart foundation near us and through that I met another CHD close to my age who became one of my closest friends. I just thought I’d comment and say hi. you are all in my prayers