Thank you all for your prayers and support over the past few days. I will admit I was pretty stressed out and very scared that Trev would need some sort of intervention. This is something we know to expect but not so soon from his last open heart surgery.
Having just moved to the Austin area we had to see a new doctor, meet new nurses and it was all very overwhelming honestly. Trevor was scared and crying and I hate that feeling more than anything.
The good news is that Trevor’s heart is doing fine, all the measurements are the same as they were 4 months ago when we saw Dr. Suh 
That was amazing news!
So what is going on? Why is he sleeping 16 hrs a day, not eating well and having “pain” in his chest? Well we have a plan and will rule out causes and only if necessary get more tests/blood work etc…
Zate and I both really liked Dr Shaffer and his nurse Julie, that was half the battle 
Please keep praying for Trevor as we work through the issues, we appreciate all your support.
Love & Hope,
Sarah
Tags: CHD
Just wanted to say hi and welcome to Austin. I came across your blog while searching for other blogs about Truncus. My daughter was also born with Truncus Arteriosus, she is now 18 months old. Glad Trevor’s measurements are good, praying for a determination on what is going on with the other issues.
-Tracy