It’s been a while since I’ve posted about Trevor and usually that is a good thing. “No news is good news”. We moved over the summer to the Austin area and are getting settled in.

Trevor is in Preschool and LOVING it! He is learning so much and getting really good at writing his name He is making friends and being a great helper for Mommy.

When we moved I had the name of a cardiologist and I set up an appt for Trevor, so we could get established. That appt is next week Tuesday, Oct 4th. I am REALLY glad it’s coming up because Trevor has been tiring more easily and having chest pain. I hate to see this but praying and believing that it’s not a fast pass to his next surgery. It’s been 2 1/2 yrs but we were hoping for 5+ yrs until we had to deal with this. Please be in prayer for the appt and for Trevor’s overall heath. I wish I could see inside his chest.

I will update after the appt.

Hope & Love,
Sarah

Trevor’s cardio check up went wonderfully, no new issues and see ya in 6 months YAY! He is a healthy 35 pounds and 42 inches tall, my little miracle.

If you are not already following Nels Matson and Bike4theCHF you should! Nels is cycling across the USA to raise money and awareness for The Children’s Heart Foundation. Nels is a CHD survivor and extreme athlete. www.bike4thechf.org

He is not being restricted on any activities (yet) NOT that you could restrict him!

This time four years ago we had no idea the road we would be on, sure I had a rough pregnancy but Trevor’s heart defects were never discovered while I was pregnant.

I remember being at the spray park having a good time with friends and Nicholas. That evening I was having contractions and went to labor & delivery, since I had a history of pre-term labor with both of my pregnancies we were not sure we were having a baby that night.  Just when we were waiting for the word- are we staying or are we going home, I was told the baby was not tolerating the contractions and I had to have a cesarean section RIGHT NOW! Zate and I were so scared.

Trevor was born about 6 mins after I was prepped and he looked great! Pink, good Apgar scores and all was well with little Trevor Christopher Berg.

May 31st was the first time anyone suspected anything about Trevor’s heart. The on-call pediatrician noticed a heart murmur and ordered further testing. A few hours later we were told Trevor’s heart had a rare and very complex defect and he would have go to the NICU until he could be transfered to St. Joseph’s Children’s PCICU.

That was the beginning of this journey we never expected to be on…it’s been hard, scary, life shaking, faith testing and full of miracles!

We thank God for every ounce of sass  and  sweetness that comes out of him ;o) He has NO FEAR and is very loving and caring.

THANK YOU! To each of you that donated, it REALLY means a lot to me and is helping vital CHD research! We had four cardiologists there and the youngest heart baby, Kennedy is 13 weeks and the oldest adult survivor was LeeAnn she is 44 years old! THIS is why funding is SO important.

Trevor is the Bike4theCHF Kid this summer and got to sign Nels Matson’s bike he will be riding across the US and they had a special car magnet made with his picture that he signed too   They will put the magnet on the Bike4theCHF van that follows Nels as he rides so Trevor can “go with him”!  He is riding 100 miles a day from San Francisco to New York City to raise money for The Children’s Heart Foundation. Oh and he gave Trevor a Build A Bear   Trevor has not let go of it once since yesterday morning! 

More pics soon!

It’s not to late to join us on Sat, May 21st throw on your walking shoes and help us walk all over CHDs.

Trevor will be signing Nels Matson’s new bike for Bike4thCHF at the heart walk.  Nels will be taking off on his cross country bike trek  just days after the walk, don’t miss the send off party!

He is doing very well, growing like a weed and learning so much at part time preschool. He is a brave, funny, adventurous, tender little boy.

We will see Dr Suh again on June 6th, ironically on the 4th anniversary of his first open heart surgery!

Reminder:
The Congenital Heart Walk- Tampa Bay is May 21, 2011 at Al Lopez park at 8am. If you have not joined our team or started your own it’s easy and lots of fun! Go to Congenital Heart Walk to register.

Also, join us for the Kick Off Party on Monday, April 25th at Flamestone Grill at 6:30pm.

Trevor trying karate with Nicholas

Trevor is almost 4! FOUR years old…wow how time has gone by fast and the last 23 months have really gone by fast. April 15th is Trevor’s 2 yr “anniversary” from his last (2nd) open heart surgery. He goes back to Dr Suh on 6-6-11, his 4 yr anniversary of his first open heart surgery.

Trev is thriving and learning so much in preschool. He loves school and to play outside. He has been expressing interest in karate for quite some time, so since you have to be 4 to register, we thought we would ask Sensei Joe if he could have a trial now. Trev has gone twice and seems to really love it and Nicholas actually (hear the shock) likes having him in class with him. Awww brotherly love. Now I just REALLY hope Dr Suh is ok with this! It’s non-impact so I hope it’s ok.

I want to personally ask you to get involved. There are several ways to help. You can walk with us, you can donate, you can become a walk sponsor (great for businesses), you can work with myself and the committee on the CHW Committee and most of all you can spread the word. Please consider forming a Team or joining Trevor’s Allstars. It’s easy go to this link and register http://www.congenitalheartwalk.kintera.org/tampabay

Thank you for all your support!