Trevor's Allstars

Sarah — Tue, 24 Aug 2010 19:13:50 +0000

SAVE THE DATE:

10/10/10

Tampa Bay Congenital Heart Walk

Create a team and recruit team mates
Raise CRITICAL money for CHD research
Walk with us at Al Lopez Park

Incentives – The more you earn, the more you receive!

Prizes are not the main reason why we walk; but we love ‘em anyway so consider them when setting your goal!

$1,000+ Choice of FlipCamCorder or iPod Shuffle plus membership in the Golden Heart club, which includes special recognition and prizes.

$500+ iPod Shuffle
$100+ Official Walk T-shirt

Walkers, Team Captains, & all those interested in joining

the Congenital Heart Walk – Tampa Bay

*** Please Join Us for a KICK OFF PARTY ***

We’ll supply the Appetizers …

FLAMESTONE’S RESTAURANT

4009 Tampa Road, Oldsmar

Tuesday, August 31st at 6:30PM

**RSVP and let us know that you’ll be there**

To register for the Congenital Heart Walk – Tampa Bay on Sunday, October 10th – go to www.CongenitalHeartWalk.Kintera.org/TampaBay. There’s no fee to register.

Kick off Party welcomes all those interested in the Congenital Heart Walk – please forward this invitation.

Join Trevor’s Allstars or form your own team, we look forward to walking with you for this great cause <3

Cardiology appt update

Sarah — Thu, 12 Aug 2010 13:37:27 +0000

Trevor saw Dr Suh on Monday and his echo “looks good” and all his vitals were good too, YAY! He is back on the blood pressure medicine due to his aorta continuing to dilate. The plan is that the medicine will help it stop dilating and we can avoid future acortic repair.

Thank you for all your prayers, comments and support.

I am getting very excited about the upcoming Congenital Heart Walk of Tampa Bay, its on October 10, 2010 and if you are local we hope to see you there! Go HERE to register and donate. I am part of the walk committee and looking forward to a great first year!

If you have any questions please email or call me and I will help you get started.

Been MIA

Sarah — Wed, 04 Aug 2010 10:10:12 +0000

I have not posted in weeks…there is a good reason, we were in Australia for a moth with Zate’s family. We completely enjoyed our trip and visit with family. The boys did great flying and seemed to soak up everything.

Trevor has a cardiology appt on Aug 9th I will post an update after that.

Updates :)

Sarah — Wed, 23 Jun 2010 21:01:18 +0000

Kaelyn is doing well, things are changing a lot for her right now but over all (from what I know) she is holding her own, thank God.

Izaak is also doing well and feeding and growing nicely He is having weekly cardiology appts and is a “star patient” YAY!

Nels has been biking across America and is in Colorado, he has been making amazing strides and getting some great coverage for congenital heart defects. We are so grateful for his sacrifice for the cause. Please consider donating to help reach the $100,000 goal go here www.firstgiving.com/athletes4heart

Trevor is doing great, we go back to Dr Suh Aug 9th. He is happy, healthy and full of energy. He love the pool and has a definite thrill seeker streak in him! Between the kiddie roller coaster at Sea World last month and the water slide at the pool today, he will be the risk taker no doubt. Not that this is news to us, but it has not lessened at all ;o)

Thank you for always keeping track of us and for your prayers. They are important and appreciated.

Hope & Love,

Pray for Kaelyn

Sarah — Mon, 21 Jun 2010 00:24:02 +0000

Six year old Kaelyn is getting her new heart tonight, please be praying for her, the staff and the family that lost a child but was so brave and thoughtful to donate organs. It is THE gift of life.

Thinking of you Kaelyn and family, Heart hugs!

UPDATE: Kaelyn is doing well and the new heart is beating strong! Praise God

Happy Father’s Day!

Sarah — Sun, 20 Jun 2010 11:36:10 +0000

Thank you to my amazing husband for being a great dad and for our wonderful children. Nicholas and Trevor are our pride and joy

This is for Zate:

Heart Dads are so strong. They put on a brave face for the moms and the kids in their life and keep everyone together as a family unit, that is what we have and I pray all heart families have that. Just a little note, you dads don’t have to always be the strong, brave ones. We know you are scared, hurt and sad about the hand we are dealt. But thank you for being that knight in shining armor for us moms who tend to be extra emotional

Have a great day, dads!

Want to help?

Sarah — Sun, 06 Jun 2010 20:25:26 +0000

Right now our friend Nels Matson is biking…yes BIKING across the US to raise money for The Children’s Heart Foundation! This is no small adventure and its not “just for fun.”

Nels is an amazing athlete and biking is fun for him however this is business and he is serious! He is on a personal mission to raise $100,000 for congenital heart defects research. That is why The Children’s Heart Foundation(CHF) is the recipient of the funds, they are the only organization that dedicates all their monies to CHD research.

CHF is our family’s organization of choice for our fundraising and ask you to consider any donation you may be making in the coming year to CHF either through Bike4CHF or through an event Trevor’s Allstars holds, check our website for events.

Thank you for your support and for your prayers always!

CHD is the #1 birth defect help us spread awareness today!

Trevor’s 1st surgery

Sarah — Sun, 06 Jun 2010 20:12:06 +0000

Today marks three years since Trevor’s first open heart surgery! I thank God every day for the blessings of medical intervention and for all the doctors and nurses and the entire PCICU staff whose hands touched my son ~ saved his life, healed his wounds and held me as I worried, cried and rejoiced!

♥ Trevor is our Allstar and MY HERO ♥

I love you sweet boy, thank you for being brave and for fighting for you very life. Mommy will fight for you and all those with CHD as long as I live.

I’m strong?

Sarah — Tue, 01 Jun 2010 22:58:08 +0000

My Dad and I were talking on the way to drop him off at the airport and he told me I was “strong”. I do not think about it often, but he really made me think on the drive home.

I never thought I was a strong person, I never think it now…but I am. Heart Mom’s (and Dad’s) are brave and strong. We have to be. If I was not strong how would I get through Trevor through his everyday life? Some days are easy “typical” if you will. Then there are the days that test your faith, your coping skills and yourself.

We are really lucky to have a “healthy” heart kid, he is strong and jumps every hurdle placed before him. Thank you God!

Happy 3rd Birthday to my HERO

Sarah — Sat, 29 May 2010 22:43:38 +0000

Trevor is 3 today!

My Trevor is sweet, loving, sassy, brave, a dare devil and most of all MY HERO! He never slows down never gives up and has a heart of gold. I am so grateful for him and for his strength and quick healing ability.

Trevor has been through so much in his short life its hard to even believe it. Here’s a run down: An emergency c-section, 4 heart catheterizations, 2 open heart operations, one trip to the ER for a cyanotic episode, a stent put in his LPA, 4 lung profusion scans, 2 swallow studies because of paralyzed vocal chords and countless echo-cardiograms.

We are so lucky to have the best medical staff in our corner and as our friends.

God Bless and thank you for all your support and prayers.