TA is a rare and complex congenital heart defect. Trevor was born with TA, VSD, ASD,stenosis of the LPA and hypoplastic arch. All of which was repaired in his first open heart surgery on June 6, 2007, he was only eight days old! He has since had the conduit replaced on April 15, 2009, he was 22 months old.
He is doing very well and we are extremely blessed with a strong healthy boy! In February 2010 he had a stint placed in his LPA to help with the stenosis.
The white part is the conduit that lets his heart work properly.
Trevor is our personal miracle but every CHD survivor is a miracle <3
Since it’s CHD week I thought I would recap why we are so involved.
Trevor was born with a rare heart defect known as Truncus Areteriosus w/ hypoplastic aortic arch and ventricular septal defect & atrial septal defect. Trevor has been through so much in his young age.
- Open heart surgery at 8 days old
- 4 heart catheterizations
- Open heart surgery at 22 months old
- Stint placed in his left pulmonary artery
- Cardiology appts every 3-6 months
- Daily blood pressure medicine
We are very blessed and happy that Trevor is not a really sick heart kid, he is so strong and healthy it’s an answer to prayer!
Today is National Wear Red day, for all heart disease!
I am wearing RED for Trevor 
I am SO happy Trevor’s heart check up was perfect and he is in great health. We don’t go back to Dr Suh for 6 months!
I do not regret following my Mommy instinct and getting Trevor in right away. I am HAPPY to be wrong, my baby is not suffering and is just an ever-changing three year old
Thank you Jesus, from You all blessings flow.
Tags: CHD
As a Mom, you just get this gut feeling and it will not go away until you do something about it.
Well for a few weeks I have been worried about Trevor for no specific reason but just “something”. I tried to put it out of my mind but it keeps coming back. So yesterday I called Nurse Debbie and told her I wanted to get Trevor in sooner than his scheduled appointment in February. Debbie said come in Wednesday December 1st! So we are going in. I will tell you, I felt a million pounds off my shoulders as soon as I made that appt.
In all honesty I really hope Trevor is just “chillin out” (you know how 3 year olds can be!) and not slowing down due to his heart.
Prayers are appreciated and I will update as soon as we get some answers.
Love & Prayers,
Tags: CHD
medical technology, it saved my son’s life. I am grateful for great doctors and nurses and every single person who has touched Trevor’s life since before he was born.
Thank you for watching and donations for the Congenital Heart Walk are being accepted until November 10, 2010, to donate click on the “donate” heart
The first-ever Congenital Heart Walk- Tampa Bay was a huge success! It was a beautiful day and a great turn out! We raised over $25,000 in online donations and Trevor’s Allstars raised $2,520!
Thank you and keep spreading awareness <3
This week, 6 precious angels gained their wings. Please keep the families in your prayers during this difficult time and please spread the word about congenital heart defects. We need more awareness and more funding for research! We will never forget the angels, nor will we forget the Warriors …still fighting the fight ♥
Tags: CHD
“8 days” is very significant to us, when Trevor was only 8 days old he had his first open heart surgery. That was really the “start” of this journey and as I like to refer to it the “roller coaster” of the heart world. Trev went through his second open heart surgery when he was 22 months old. Trevor is now 3 years old, healthy and we hope and pray it will be more than 5 years until his next operation. With CHD research funding, the possibility of Trevor’s life-time of surgeries is lessened.
On October 10, 2010 we will be participating in the first-ever Congenital Heart Walk-Tampa Bay! We are SO excited to be part of this brand new National Walk.
If you can join us locally or virtually we would love to walk with you and your family, please check out our Team Page and join and/or donate to this worthy cause.
The walk is 5k and is completely family friendly. Load up the kids and come out to Al Lopez Park for fun and sun!
